Hearing on Treatment for Rare Diseases
2024-03-04T11:35:58-05:00https://ximage.c-spanvideo.org/eyJidWNrZXQiOiJwaWN0dXJlcy5jLXNwYW52aWRlby5vcmciLCJrZXkiOiJGaWxlc1wvMzFkXC8wMTFcLzE3MDkyMjQ5NTJfMDExLmpwZyIsImVkaXRzIjp7InJlc2l6ZSI6eyJmaXQiOiJjb3ZlciIsImhlaWdodCI6NTA2fX19Rare disease treatments, pharmaceutical treatment costs, access to out-of-state health care, and research and development legislative proposals were among the topics discussed as medical professionals and public health researchers testified on ways to support patients with rare diseases during a hearing before the House Energy and Commerce Subcommittee on Health. The hearing took place on Rare Disease Day, a globally observed day dedicated to bringing awareness to patients living with rare diseases.
Rare disease treatments, pharmaceutical treatment costs, access to out-of-state health care, and research and development legislative propos… read more
Rare disease treatments, pharmaceutical treatment costs, access to out-of-state health care, and research and development legislative proposals were among the topics discussed as medical professionals and public health researchers testified on ways to support patients with rare diseases during a hearing before the House Energy and Commerce Subcommittee on Health. The hearing took place on Rare Disease Day, a globally observed day dedicated to bringing awareness to patients living with rare diseases. close
People in this video
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Jerome Ballreich Research Professor and Health Economist Johns Hopkins University Bloomberg School of Public Health -
Alexander Bassuk M.D. Pediatric Neurologist University of Iowa Hospitals and Clinics->Stead Family Children's Hospital
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Alice Chen Associate Professor University of Southern California->Price (Sol) School of Public Policy
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